I have had symptons which point towards Polychondritis and the pain today is so severe that my Doctor said if this continues to be painful like it is now then I have to be admitted to hospital. My symptons started 2 years ago after a Septorhinoplasty where Cartlidge is taken from my ear to replace the broken cartlidge in my nose. Ever since then my right ear causes severe pain, swelling, hot, throbbing and burning. This happens on a week on week off basis and sometimes have a good 3 week break and it returns. I am being treated for Polychondritis now but since taking steroids the pain has got worse. I have been hopitalised many of times and given antibiotics via IV. It works but as soon as I stop the antibiotics it flares up again. My consultants are still not sure what it is and I have also been treated for TB with no effects. They still say it could be Polychondritis or a foreign infection. I have had many of blood tests and biopsys taken and all they show is that my blood inflamation levels are high. Also when the pain and swellings are present my glands around my throught also swell and are painful. I remember that they even removed a gland to test and it just came back as an re-active gland.
Im on morphine oral, morphine tabs, along with all other sorts of pain kellers and steroids and still nothing. As soon as I think its going it comes back again. Driving me nuts.
My current medication whixh is used to treat or at least help as Polychondritis is treatable seems to be working.
I am and have been on Azothioprine with Steroids and it does indeed seem to work.
Azothioprine, dampens down your imune system. I am still awaiting to see my consultant. Although sometimes I the pain is still bad but the current medication has helped. Hope this helps you and have you a simular condition?
Sorry for being away for so long. And I am sorry to hear about your condition. Am glad your pain is under control. Cartilage healing takes a very long time, I am told. My daughter too suffers from a swollen painful ear problem, but hers is a very strange case. It is no longer painful, but when the room is hot, it can turn very red and swollen. When you touch it, it turns red too. POlychondritis was suspected too, but her blood so far showed nothing. What do they test your blood for, may I know. I googled and it seems that a certain drug infliximab does help to control the progress of polychondritis. Do take care. Is there anybody who is with you?
Well as regards to someone with me, I am going through a faily breakdown and it really isn't a good time. My former partner is selfish and I think all of this has caused strain. If she was suffering then I would of course help but she preferes her pop and leaves me and the children for weeks on end!!
Blood Tests - CRP and a Full Blood Count.
My levels have always been quite normal throughout, although Inflamation Levels were slightly above normal but nothing to be concerned about. That is why the disease is hard to detect.
Azothiprine is an anti-immune drug which dampens my immune system. It is suspected that my immune system is attacking the body, which causes the pain and inlamation. My ear is now totally deformed.
Poltchondritis is still only suspected and the condition could be something totally different. The condition also efects my nose which was part of the original operation I had (SpetoRhinoPlasty).
I recently stopped my medication as I was continually being sick which was black in colour. Once a week had passed my condition with my nose and ear appeared and was very painful. I'm now worried that the medication is causing more damage to me as I have been on this medication for 2 years approx and all follow-up concultant appointments keep getting cancelled, thats the UK NHS System for you....
Azathiprine medication has to be monitored as it also effect the liver.
There is no cure for Polychondritis and the treatment is only to reduce thecondition rather than cure.
I must admit the pain has been so severe that I have been smashing my head against the floor. I find that heat helps the pain but this could just be a mind thing. As they say, if you have a painful leg, hit the other one and all the body will do is focus on the new injury.
I had scans, full courses of very strong antibiotics and they showed no improvement. Although when I was on the antibiotics the condition did dissapear, as soon as the course had finished back it came.
My Current Medication; Azothiprine Prednisolone Morphine Sulphate Tabs Morphine Sulphate Oral Sol. Citalopram Amitriptyline Ameprozole
I do hope your daughters condition improves and it is always worth asking for Azothiprine and Steroid Treatment, it may be worth a try.
Azathioprine is an immunosuppressant used in organ transplantation, autoimmune disease such as rheumatoid arthritis and pemphigus or inflammatory bowel disease such as Crohn's disease and ulcerative colitis as well as multiple sclerosis. It is a pro-drug, converted in the body to the active metabolites 6-mercaptopurine and 6-thioinosinic acid. It is a purine synthesis inhibitor.
Azathioprine is produced by a number of generic manufacturers and as branded names (Azasan by Salix in the U.S., Imuran by GlaxoSmithKline in Canada and the U.S., Australia and UK, Azamun in Finland and Imurel in Scandinavia).
Comment
I have had symptons which point towards Polychondritis and the pain today is so severe that my Doctor said if this continues to be painful like it is now then I have to be admitted to hospital. My symptons started 2 years ago after a Septorhinoplasty where Cartlidge is taken from my ear to replace the broken cartlidge in my nose. Ever since then my right ear causes severe pain, swelling, hot, throbbing and burning. This happens on a week on week off basis and sometimes have a good 3 week break and it returns. I am being treated for Polychondritis now but since taking steroids the pain has got worse. I have been hopitalised many of times and given antibiotics via IV. It works but as soon as I stop the antibiotics it flares up again. My consultants are still not sure what it is and I have also been treated for TB with no effects. They still say it could be Polychondritis or a foreign infection. I have had many of blood tests and biopsys taken and all they show is that my blood inflamation levels are high. Also when the pain and swellings are present my glands around my throught also swell and are painful. I remember that they even removed a gland to test and it just came back as an re-active gland.
Im on morphine oral, morphine tabs, along with all other sorts of pain kellers and steroids and still nothing. As soon as I think its going it comes back again. Driving me nuts.
Does anyone else experience anything like this?
I hope someone can offer some advice
Replies
How are you today? have you improved? Is it really polychondritis?
My current medication whixh is used to treat or at least help as Polychondritis is treatable seems to be working.
I am and have been on Azothioprine with Steroids and it does indeed seem to work.
Azothioprine, dampens down your imune system. I am still awaiting to see my consultant. Although sometimes I the pain is still bad but the current medication has helped. Hope this helps you and have you a simular condition?
I have to have regular blood tests to keep an eye on my blood count also.
Polychondritis is not treatable but the symptons are. My medication makes me very ill at times but I'm happy that the pain is under control.
Sorry for being away for so long. And I am sorry to hear about your condition. Am glad your pain is under control. Cartilage healing takes a very long time, I am told. My daughter too suffers from a swollen painful ear problem, but hers is a very strange case. It is no longer painful, but when the room is hot, it can turn very red and swollen. When you touch it, it turns red too. POlychondritis was suspected too, but her blood so far showed nothing. What do they test your blood for, may I know. I googled and it seems that a certain drug infliximab does help to control the progress of polychondritis. Do take care. Is there anybody who is with you?
Well as regards to someone with me, I am going through a faily breakdown and it really isn't a good time. My former partner is selfish and I think all of this has caused strain. If she was suffering then I would of course help but she preferes her pop and leaves me and the children for weeks on end!!
Blood Tests - CRP and a Full Blood Count.
My levels have always been quite normal throughout, although Inflamation Levels were slightly above normal but nothing to be concerned about. That is why the disease is hard to detect.
Azothiprine is an anti-immune drug which dampens my immune system. It is suspected that my immune system is attacking the body, which causes the pain and inlamation. My ear is now totally deformed.
Poltchondritis is still only suspected and the condition could be something totally different. The condition also efects my nose which was part of the original operation I had (SpetoRhinoPlasty).
I recently stopped my medication as I was continually being sick which was black in colour. Once a week had passed my condition with my nose and ear appeared and was very painful. I'm now worried that the medication is causing more damage to me as I have been on this medication for 2 years approx and all follow-up concultant appointments keep getting cancelled, thats the UK NHS System for you....
Azathiprine medication has to be monitored as it also effect the liver.
There is no cure for Polychondritis and the treatment is only to reduce thecondition rather than cure.
I must admit the pain has been so severe that I have been smashing my head against the floor. I find that heat helps the pain but this could just be a mind thing. As they say, if you have a painful leg, hit the other one and all the body will do is focus on the new injury.
I had scans, full courses of very strong antibiotics and they showed no improvement. Although when I was on the antibiotics the condition did dissapear, as soon as the course had finished back it came.
My Current Medication;
Azothiprine
Prednisolone
Morphine Sulphate Tabs
Morphine Sulphate Oral Sol.
Citalopram
Amitriptyline
Ameprozole
I do hope your daughters condition improves and it is always worth asking for Azothiprine and Steroid Treatment, it may be worth a try.
Acomprosate
Azathioprine is an immunosuppressant used in organ transplantation, autoimmune disease such as rheumatoid arthritis and pemphigus or inflammatory bowel disease such as Crohn's disease and ulcerative colitis as well as multiple sclerosis. It is a pro-drug, converted in the body to the active metabolites 6-mercaptopurine and 6-thioinosinic acid. It is a purine synthesis inhibitor.
Azathioprine is produced by a number of generic manufacturers and as branded names (Azasan by Salix in the U.S., Imuran by GlaxoSmithKline in Canada and the U.S., Australia and UK, Azamun in Finland and Imurel in Scandinavia).