Sorry for being away for so long. And I am sorry to hear about your condition. Am glad your pain is under control. Cartilage healing takes a very long time, I am told. My daughter too suffers from a swollen painful ear problem, but hers is a very strange case. It is no longer painful, but when the room is hot, it can turn very red and swollen. When you touch it, it turns red too. POlychondritis was suspected too, but her blood so far showed nothing. What do they test your blood for, may I know. I googled and it seems that a certain drug infliximab does help to control the progress of polychondritis. Do take care. Is there anybody who is with you?
I have to have regular blood tests to keep an eye on my blood count also.
Polychondritis is not treatable but the symptons are. My medication makes me very ill at times but I'm happy that the pain is under control.
Well as regards to someone with me, I am going through a faily breakdown and it really isn't a good time. My former partner is selfish and I think all of this has caused strain. If she was suffering then I would of course help but she preferes her pop and leaves me and the children for weeks on end!!
Blood Tests - CRP and a Full Blood Count.
My levels have always been quite normal throughout, although Inflamation Levels were slightly above normal but nothing to be concerned about. That is why the disease is hard to detect.
Azothiprine is an anti-immune drug which dampens my immune system. It is suspected that my immune system is attacking the body, which causes the pain and inlamation. My ear is now totally deformed.
Poltchondritis is still only suspected and the condition could be something totally different. The condition also efects my nose which was part of the original operation I had (SpetoRhinoPlasty).
I recently stopped my medication as I was continually being sick which was black in colour. Once a week had passed my condition with my nose and ear appeared and was very painful. I'm now worried that the medication is causing more damage to me as I have been on this medication for 2 years approx and all follow-up concultant appointments keep getting cancelled, thats the UK NHS System for you....
Azathiprine medication has to be monitored as it also effect the liver.
There is no cure for Polychondritis and the treatment is only to reduce thecondition rather than cure.
I must admit the pain has been so severe that I have been smashing my head against the floor. I find that heat helps the pain but this could just be a mind thing. As they say, if you have a painful leg, hit the other one and all the body will do is focus on the new injury.
I had scans, full courses of very strong antibiotics and they showed no improvement. Although when I was on the antibiotics the condition did dissapear, as soon as the course had finished back it came.
My Current Medication; Azothiprine Prednisolone Morphine Sulphate Tabs Morphine Sulphate Oral Sol. Citalopram Amitriptyline Ameprozole
I do hope your daughters condition improves and it is always worth asking for Azothiprine and Steroid Treatment, it may be worth a try.
Azathioprine is an immunosuppressant used in organ transplantation, autoimmune disease such as rheumatoid arthritis and pemphigus or inflammatory bowel disease such as Crohn's disease and ulcerative colitis as well as multiple sclerosis. It is a pro-drug, converted in the body to the active metabolites 6-mercaptopurine and 6-thioinosinic acid. It is a purine synthesis inhibitor.
Azathioprine is produced by a number of generic manufacturers and as branded names (Azasan by Salix in the U.S., Imuran by GlaxoSmithKline in Canada and the U.S., Australia and UK, Azamun in Finland and Imurel in Scandinavia).
Comment
Sorry for being away for so long. And I am sorry to hear about your condition. Am glad your pain is under control. Cartilage healing takes a very long time, I am told. My daughter too suffers from a swollen painful ear problem, but hers is a very strange case. It is no longer painful, but when the room is hot, it can turn very red and swollen. When you touch it, it turns red too. POlychondritis was suspected too, but her blood so far showed nothing. What do they test your blood for, may I know. I googled and it seems that a certain drug infliximab does help to control the progress of polychondritis. Do take care. Is there anybody who is with you?
Parent comment
I have to have regular blood tests to keep an eye on my blood count also. Polychondritis is not treatable but the symptons are. My medication makes me very ill at times but I'm happy that the pain is under control.
Replies
Well as regards to someone with me, I am going through a faily breakdown and it really isn't a good time. My former partner is selfish and I think all of this has caused strain. If she was suffering then I would of course help but she preferes her pop and leaves me and the children for weeks on end!!
Blood Tests - CRP and a Full Blood Count.
My levels have always been quite normal throughout, although Inflamation Levels were slightly above normal but nothing to be concerned about. That is why the disease is hard to detect.
Azothiprine is an anti-immune drug which dampens my immune system. It is suspected that my immune system is attacking the body, which causes the pain and inlamation. My ear is now totally deformed.
Poltchondritis is still only suspected and the condition could be something totally different. The condition also efects my nose which was part of the original operation I had (SpetoRhinoPlasty).
I recently stopped my medication as I was continually being sick which was black in colour. Once a week had passed my condition with my nose and ear appeared and was very painful. I'm now worried that the medication is causing more damage to me as I have been on this medication for 2 years approx and all follow-up concultant appointments keep getting cancelled, thats the UK NHS System for you....
Azathiprine medication has to be monitored as it also effect the liver.
There is no cure for Polychondritis and the treatment is only to reduce thecondition rather than cure.
I must admit the pain has been so severe that I have been smashing my head against the floor. I find that heat helps the pain but this could just be a mind thing. As they say, if you have a painful leg, hit the other one and all the body will do is focus on the new injury.
I had scans, full courses of very strong antibiotics and they showed no improvement. Although when I was on the antibiotics the condition did dissapear, as soon as the course had finished back it came.
My Current Medication;
Azothiprine
Prednisolone
Morphine Sulphate Tabs
Morphine Sulphate Oral Sol.
Citalopram
Amitriptyline
Ameprozole
I do hope your daughters condition improves and it is always worth asking for Azothiprine and Steroid Treatment, it may be worth a try.
Acomprosate
Azathioprine is an immunosuppressant used in organ transplantation, autoimmune disease such as rheumatoid arthritis and pemphigus or inflammatory bowel disease such as Crohn's disease and ulcerative colitis as well as multiple sclerosis. It is a pro-drug, converted in the body to the active metabolites 6-mercaptopurine and 6-thioinosinic acid. It is a purine synthesis inhibitor.
Azathioprine is produced by a number of generic manufacturers and as branded names (Azasan by Salix in the U.S., Imuran by GlaxoSmithKline in Canada and the U.S., Australia and UK, Azamun in Finland and Imurel in Scandinavia).