I posted before about the fact that this disease is communicable. I have observed it firsthand, and I'm curious if anyone else has comment. It's not allergies or a magnesium deficiency - I know we all wish it was, so that we could be free from it that easily, but it's not. I have seen the disease spread through my family and co-workers, and until the medical community treats this RES as communicable rather than laughable, I'm afraid that we will continue to suffer. I'm in my 40's now; it started in my senior year of High School. It has profoundly affected my life, and not for the bettter. When I read these posts, the ones that truly break my heart are from the young kids who are suffering and looking for answers - I remember how horrible it was to sit in class and feel the redness start and the anger and helplessness that went with it. At least now I have positioned myself in a career where I can be outside (and usually alone) when I get a flare up. I hope that there will be a cure some day. I do think that some people have a natural immunity to this, so I have to believe that there is hope. By the way, I have to agree with another poster that men are more likely to contract the disease than women. Also, and this is probably totally unconnected and coming out of left field, but does anyone else have a dark colored spot on either ear - kind of like a freckle or mole? Like behind the ear, or on the edge? Take care all - I wish you the best in your struggles.
A deep mole - that's how I would describe it. I asked because I have one and I noticed it on some stranger who had an RES flare-up in the elevator. Anyone else? Any connection? Unless Anonymous is the guy from the elevator, that's three people.
I'm waay late to this thread, but in case anyone else winds up here; I've been getting one red/hot ear as long as I can remember. I'm 31 now, been happening since at least 5 - 6. Also a male, and also have a spot on the top of one ear.
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yes i have that black spot - kind of like a mole deep bellow the edge of my ear.
Parent comment
I posted before about the fact that this disease is communicable. I have observed it firsthand, and I'm curious if anyone else has comment. It's not allergies or a magnesium deficiency - I know we all wish it was, so that we could be free from it that easily, but it's not. I have seen the disease spread through my family and co-workers, and until the medical community treats this RES as communicable rather than laughable, I'm afraid that we will continue to suffer. I'm in my 40's now; it started in my senior year of High School. It has profoundly affected my life, and not for the bettter. When I read these posts, the ones that truly break my heart are from the young kids who are suffering and looking for answers - I remember how horrible it was to sit in class and feel the redness start and the anger and helplessness that went with it. At least now I have positioned myself in a career where I can be outside (and usually alone) when I get a flare up. I hope that there will be a cure some day. I do think that some people have a natural immunity to this, so I have to believe that there is hope. By the way, I have to agree with another poster that men are more likely to contract the disease than women. Also, and this is probably totally unconnected and coming out of left field, but does anyone else have a dark colored spot on either ear - kind of like a freckle or mole? Like behind the ear, or on the edge? Take care all - I wish you the best in your struggles.
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A deep mole - that's how I would describe it. I asked because I have one and I noticed it on some stranger who had an RES flare-up in the elevator. Anyone else? Any connection? Unless Anonymous is the guy from the elevator, that's three people.
I'm waay late to this thread, but in case anyone else winds up here; I've been getting one red/hot ear as long as I can remember. I'm 31 now, been happening since at least 5 - 6. Also a male, and also have a spot on the top of one ear.