My 9 yr old son has been suffering with red, hot, burning ears since age 7. He actually sleeps with ice packs every night. They seem to get this way even more often when he tries to play sports (is very active) or he is tired/upset. He is very sensitive. He also has repeated sinus infections. He has been allergy tested, ct scans/mri on his brain (he also would get frequent headaches) and a full body scan as well as extensive bloodwork. I was told by a member of the family (who is a teaching pediatrician) to take my son to a Rheumatologist as it sounded like he had relapsing policychondritis. Unfortunatley, to confirm this, I was told he would need a biopsy of his ear tissue (cartilidge) when his ear was badly inflamed. They aren't willing to do this though becaus of his age and there is no real treatment other than steriods/anti-inflammatory drugs. It is better than when he was 7 years old, but he still gets bad days. My son also was diagnosed with Dyspraxia which is a neurological conditon, and I beleive this may be related somehow. He also has had an enlarged lymph node on his neck since he was 6 weeks old. Every docotor says to leave it alone, but I wonder if this would not affect his neck?? TO conclude, he has seen neurologists, ENTs, rheumatologists,etc., and I still don't have an answer. It can be quite painful for my son at times and I'd love to help him.
My 10-year-old has had it for 2 years. Tonight his ear hurt so bad he said God must hate me...why won't He help me! It makes me cry because I can't help. My mom gave me an article that said to use vinegar soaks for possible fungus. It does seem to help a little, but it might just be because it's a cold soak. He goes to bed with ice packs, and cries. I wish doctors could find an answer. Not all episodes are as bad as this one tonight. I wouldn't let anyone do anything invasive unless it's a life or death need! Good luck and God Bless!
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My 9 yr old son has been suffering with red, hot, burning ears since age 7. He actually sleeps with ice packs every night. They seem to get this way even more often when he tries to play sports (is very active) or he is tired/upset. He is very sensitive. He also has repeated sinus infections. He has been allergy tested, ct scans/mri on his brain (he also would get frequent headaches) and a full body scan as well as extensive bloodwork. I was told by a member of the family (who is a teaching pediatrician) to take my son to a Rheumatologist as it sounded like he had relapsing policychondritis. Unfortunatley, to confirm this, I was told he would need a biopsy of his ear tissue (cartilidge) when his ear was badly inflamed. They aren't willing to do this though becaus of his age and there is no real treatment other than steriods/anti-inflammatory drugs. It is better than when he was 7 years old, but he still gets bad days. My son also was diagnosed with Dyspraxia which is a neurological conditon, and I beleive this may be related somehow. He also has had an enlarged lymph node on his neck since he was 6 weeks old. Every docotor says to leave it alone, but I wonder if this would not affect his neck?? TO conclude, he has seen neurologists, ENTs, rheumatologists,etc., and I still don't have an answer. It can be quite painful for my son at times and I'd love to help him.
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My 10-year-old has had it for 2 years. Tonight his ear hurt so bad he said God must hate me...why won't He help me! It makes me cry because I can't help. My mom gave me an article that said to use vinegar soaks for possible fungus. It does seem to help a little, but it might just be because it's a cold soak. He goes to bed with ice packs, and cries. I wish doctors could find an answer. Not all episodes are as bad as this one tonight. I wouldn't let anyone do anything invasive unless it's a life or death need!
Good luck and God Bless!