My son is now 13 and he has had severe abdominal pain attacks since November 2006. He was hospitalized 3 times this year with stays of 10 days each. We have been in to emerg over 20 times.This all began in November when he a very high fever for 8 days of over 39 degrees which was the onset of the attacks which were so severe he doubled over and was given morphine and other pain killers to stop the attacks. That eventually didn't work either as he became allergic to the morphine. One thing that always preceded the attacks were burning red hot ears, they actually turned purple. This has now been linked to abdominal migraine which only children can get. He is on gabapentin and amitryptaline (anti seizure medication) which has finally after many months of mis- diagnosis worked to make the attacks stop. He missed 5months of school with this and it took a lot of effort to get the doctors to realize what this was. If your child has severe pain attacks in the abdomen please get them to check everything, we have also been tested for carcinoid syndrome and every other organic disease out there. After a almost 2 months pain free, he is now getting the burning hot ears again and I am so worried it will begin to come back. I sure wish that the doctors knew more about the brain and why it works the way it does. All we can do is put cold cloths on, ice cubes etc. They also mentioned neuropathic pain which is some mis firing in the brain that sends pain signals out. That could also be due to the high fever. I hope this helps anyone who has been going through the similar thing.
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My son is now 13 and he has had severe abdominal pain attacks since November 2006. He was hospitalized 3 times this year with stays of 10 days each. We have been in to emerg over 20 times.This all began in November when he a very high fever for 8 days of over 39 degrees which was the onset of the attacks which were so severe he doubled over and was given morphine and other pain killers to stop the attacks. That eventually didn't work either as he became allergic to the morphine. One thing that always preceded the attacks were burning red hot ears, they actually turned purple. This has now been linked to abdominal migraine which only children can get. He is on gabapentin and amitryptaline (anti seizure medication) which has finally after many months of mis- diagnosis worked to make the attacks stop. He missed 5months of school with this and it took a lot of effort to get the doctors to realize what this was. If your child has severe pain attacks in the abdomen please get them to check everything, we have also been tested for carcinoid syndrome and every other organic disease out there. After a almost 2 months pain free, he is now getting the burning hot ears again and I am so worried it will begin to come back. I sure wish that the doctors knew more about the brain and why it works the way it does. All we can do is put cold cloths on, ice cubes etc. They also mentioned neuropathic pain which is some mis firing in the brain that sends pain signals out. That could also be due to the high fever. I hope this helps anyone who has been going through the similar thing.